Trusted Resources: News & Meetings
Latest announcements and gatherings
Stem Cell Transplant for Bridgnorth Boy With Rare Condition
Twenty-two-month-old Gunner, from Bridgnorth, has Mucopolysaccharidosis (MPS Type 1) which means he cannot break down his body’s natural sugars. There were no stem cell matches in his family nor on the UK register, but one was tracked down in Germany. His mother Holly said he was doing “better than we all expected,” after the operation.
Gunner was first diagnosed with MPS in March after struggling with his breathing and an umbilical hernia. The condition affects about one in 100,000 people and can lead to damage to organs and the brain. The race was then on to find a bone marrow match after doctors said a transplant had the best chance of working if it was done before he was two.
BookmarkRelated Content
-
Extraordinary Experiences ProgramProgram provides grants of up to $1000 t...
-
The Beginning of the End of Allogeneic Transplantation for Hurler SyndromeHurler syndrome (mucopolysaccharidosis t...
-
Hunter Syndrome (MPS II): An Uncommon Combination of Childhood Complaintshttps://www.youtube.com/watch?v=7kBGEYAF...
-
Hunter and Kingston’s StoryI have three sons. Hunter is my oldest, ...
-
Daily Living With MPS and Related DiseasesDealing with your child’s diagnosis wi...
-
Cure Mucolipidosis – InstagramCure Mucolipidosis is a non-profit organ...
-
Advocacy Groups Unveil ‘Roadmap’ for Sanfilippo Research, CareA coalition of patient advocacy organiza...
Powered by
